My Meeting with the Cancer Board: Diagnosing and Getting ready to Treat

After my Hospital stay of 5 days I was more then excited to get home and get ready to Meet with Dr Steve Scott to figure out A was this a cancer and B how to move forward. I did not do any research on the web because I wanted to maintain a positive outlook and frankly did not want to scare myself with all the possibilities. After 5 days in the Hospital I was so excited to shower and wash my hair as it had literally gotten out of control :)


Thursday March 1st I met with Dr Scott who let me know that yes what I had was a type of Cancer however they were still unsure of the type of cancer they had sent it off to the nations specialist to run tests on the biopsy sample as it was showing up as a Small Blue Cell Sarcoma but some of the markers were inconsistent with the types of cancers that they were thinking it was on the Table they were looking at it being


Ewings Sarcoma: Ewing sarcoma is a malignant round-cell tumor. It is a rare disease in which cancer cells are found in the bone or in soft tissue. The most common areas in which it occurs are the pelvis, the femur, the humerus, the ribs and clavicle.

Because a common genetic locus is responsible for a large percentage of Ewing sarcoma and primitive neuroectodermal tumors, these are sometimes grouped together in a category known as the Ewing family of tumors.^[1] The diseases are, however, considered to be different: peripheral primitive neuroectodermal tumors are generally not associated with bones, while Ewing sarcomas are most commonly related to bone.

Ewing sarcoma occurs most frequently in teenagers, with a male/female ratio of 1.6:1.^[2]

Although usually classified as a bone tumor, Ewing sarcoma can have characteristics of both mesodermal and ectodermal origin, making it difficult to classify.^[3]

Rhabdomyosarcoma: A rhabdomyosarcoma is a type of cancer, specifically a sarcoma (cancer of connective tissues), in which the cancer cells are thought to arise from skeletal muscle progenitors. It can also be found attached to muscle tissue, wrapped around intestines, or in any anatomic location. Most occur in areas naturally lacking in skeletal muscle, such as the head, neck, and genitourinary tract.

Or Small Cell Lymphoma: Lymphoma is a cancer of the lymphocytes, a type of cell that forms part of the immune system. Typically, lymphomas present as a solid tumor of lymphoid cells. Treatment might involve chemotherapy and in some cases radiotherapy and/or bone marrow transplantation, and can be curable depending on the histology, type, and stage of the disease.^[1] These malignant cells often originate in lymph nodes, presenting as an enlargement of the node (a tumor). It can also affect other organs in which case it is referred to as extranodal lymphoma. Extranodal sites include the skin, brain, bowels and bone. Lymphomas are closely related to lymphoid leukemias, which also originate in lymphocytes but typically involve only circulating blood and the bone marrow (where blood cells are generated in a process termedhaematopoesis) and do not usually form static tumors.^[1] There are many types of lymphomas, and in turn, lymphomas are a part of the broad group of diseases called hematological neoplasms.

Based on these three types of cancers although we did not yet know what the type was I met with the Cancer board on Tuesday March 6th and though we were still waiting on an official diagnosis I was able to meet with everyone who would be helping me throughout my treatment and go over possible treatment plans.

During this meeting the thing that surprised me the most was how many things they offer to cancer patents free of charge to help them through there time of treatment I was really touched as obviously these things are not free which showed me how many people out there were willing to donate not only there money but there time to help those going through this I was completely unaware that there was so much available and it really touched me and made me want to be more involved in volunteering my time. Some of the things they offer were Massage, Acupuncture, Meditation classes, and a class called Look Good, Feel Better this is a 2 hour workshop that helps teach women going through appearance-related changes from cancer treatment hands on skin care and make-up application and ideas for dealing with hair loss as far as eyebrows and eyelashes and covering the sores you often get on your face when going through Chemo this class even comes with a complimentary cosmetic kit that matches your skin tones. 


I was told at this meeting that I would experience complete hair loss this would include my eye lashes and eye brows so to have a class out there to teach me how to draw on my eyebrows and apply fake eyelashes thing I have never attempted before really made me feel so cared for. Once I have gone through my treatment and am back on the mend and health I think one of the things I would like to do is volunteer in some way to help others going through treatment.